FDN — FOUNDATION / NON-PROFIT

#RAREis Scholarship

EveryLife Foundation, funded by Amgen

This application window has closed. The entry is kept for reference — check the funder's page below for a future cycle. It is hidden from the index unless “Include past programs” is on.

Award

$5,000 one-time; up to 58 recipients/yr

Deadline

2026 cycle closed Apr 28; next expected ~Mar 2027

Award type

Cash grant

Focus

Patient & family support

One-time $5,000 scholarships for students living with any rare disease. The program has awarded nearly 500 scholarships since 2020 and is administered by Scholarship America. The 2026 application window ran March 17 to April 28.

Why it's in this index

Barth syndrome qualifies as a rare disease; the scholarship is disease-agnostic.

Who can apply

US residents age 17+, physician-diagnosed with a rare disease, enrolling full- or part-time at an accredited 2- or 4-year college, university, or vocational-technical school.

How to apply

Apply via Scholarship America when the window opens (typically March).

Links & downloads

#RAREis Scholarship ↗Scholarship America ↗