FDN — FOUNDATION / NON-PROFIT

BSF Emergency Relief Program

Barth Syndrome Foundation, administered by NORD

Award

Short-term emergency assistance (fund sized for ~20 families/yr)

Deadline

Rolling

Award type

Cash grant

Focus

Patient & family support

Short-term cash assistance for unexpected, non-medical emergency expenses. Established 2022. BSF funds the program and NORD administers it, so families can apply privately, with eligibility screened by NORD patient services.

Why it's in this index

Barth-specific by design and restricted to affected families — the most direct financial help BSF offers, and private by construction.

Who can apply

Families affected by Barth syndrome who meet NORD's eligibility screening.

How to apply

Call NORD Patient Services at 1-203-292-0293 (Mon–Thu 8:30–7 ET, Fri 8:30–6 ET) or email barthsyndrome_assist@rarediseases.org.

Links & downloads

BSF Emergency Relief ↗