NORD RareCare Patient Assistance Programs
National Organization for Rare Disorders
Award
Varies by fund; first-come while funds last
Deadline
Rolling
Award type
Cash grant
Focus
Patient & family support
NORD's assistance portfolio covers medication costs, insurance premium and copay assistance, diagnostic testing, travel for clinical trials or specialist consultations, and limited travel and lodging for rare-disease educational conferences.
Why it's in this index
Open to Barth families as a rare disease. Note that Barth families also have the dedicated BSF-funded emergency fund, listed separately, which is often the faster route.
Who can apply
US residents of all states and territories; per-fund financial screening applies.
How to apply
Call 1-800-999-6673; a RareCare Patient Services Representative walks applicants through the process.
Links & downloads
Tags
Related programs
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Last updated August 28, 2026 · Suggest an update to this entry