Marcel's Way Family Fund & Mito411
MitoAction
One-time need-based grants up to $500 for mitochondrial-disease-related costs: uncovered medical expenses, lodging during treatment, equipment, home or vehicle modifications, and respite. One grant per patient lifetime, requiring a physician letter and a community-professional letter. Applications are currently closed. MitoAction's Mito411 helpline (1-888-648-6411) and weekly support groups remain active.
Barth syndrome qualifies as a mitochondrial disease when the fund reopens; the helpline and support groups are available now regardless.
US residents with a diagnosed mitochondrial disorder, which includes Barth syndrome.
Check the fund page for reopening; the Mito411 helpline operates regardless.
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Last updated August 28, 2026 · Suggest an update to this entry