FDN — FOUNDATION / NON-PROFIT

BSF Strategic Initiatives Program (SIP)

Barth Syndrome Foundation

Award

Project-based (~$70K/yr scale to date)

Deadline

No open call — initiated with BSF

Award type

Cash grant

Focus

Preclinical & therapeutics · Clinical research · Registries & biomarkers

Funding awarded outside the competitive grant cycle to translational and clinical programs facing a specific technical, manufacturing, regulatory, or financial obstacle. Funded projects include the Collaborative Clinical Registry arrhythmia project (Tan/Phoon, NYU) and optimization of gene therapy capsids (William Pu, Boston Children's).

Why it's in this index

Barth-specific by design. There is no open call and no deadline: BSF initiates these, so the way in is a conversation with the foundation about a concrete obstacle blocking a BTHS program.

Who can apply

Investigators whose translational/clinical BTHS programs face a defined obstacle. There is no open competition; projects are coordinated with BSF.

How to apply

No standing application cycle. Contact BSF's Director of Research (lindsay.marjoram@barthsyndrome.org) to discuss a project.

Links & downloads

SIP page ↗