CORP — CORPORATE / INDUSTRY

Ultragenyx IST Support & Rare Entrepreneur Bootcamp

Ultragenyx (Bootcamp with EveryLife Foundation)

Award

IST funding/drug; Bootcamp training (no cash)

Deadline

Rolling (IST); Bootcamp annual

Award type

Cash grant

Focus

Clinical research · Org capacity

Ultragenyx has supported 80+ investigator-sponsored trials globally in rare metabolic and genetic disease, with funding and drug. Its annual Rare Entrepreneur Bootcamp, run with the EveryLife Foundation, trains patient advocates who fund rare-disease research in drug development, trial design, IP, and pitching.

Why it's in this index

The rare metabolic and genetic scope covers BTHS for the IST route. The Bootcamp is aimed at BSF staff and family advocates rather than at researchers.

Who can apply

ISTs: qualified investigators aligned with Ultragenyx's rare metabolic/genetic focus. Bootcamp: patient advocates and foundation leaders; attendance is invitation-based for a small number of organizations per cohort.

How to apply

Bootcamp applications via rarebootcamp.com; IST inquiries through Ultragenyx medical affairs (no public portal).

Links & downloads

Rare Entrepreneur Bootcamp ↗Ultragenyx bootcamp page ↗