EveryLife Foundation Programs (advocacy & policy)
EveryLife Foundation for Rare Diseases
Award
Varies (travel, tools, scholarships)
Deadline
See program pages
Award type
Cash grant
Focus
Org capacity ยท Patient & family support
Policy and regulatory advocacy support rather than bench research. The Rare Giving program funds advocacy groups and patient advocates, covering travel, survey tools, and IRB and publication fees for patient-experience data. #RAREis Scholarships support students living with rare diseases.
Why it's in this index
Applies to BSF policy work such as newborn screening, and to community members as scholarship applicants. Not a route to lab funding.
Who can apply
Advocacy organizations and patients, not scientists.
How to apply
Through the program pages at everylifefoundation.org.
Links & downloads
Related programs
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Last updated August 28, 2026 ยท Suggest an update to this entry