Amgen #RAREis Advocate Grant
Amgen (formerly Horizon Therapeutics)
Award
$5,000 one-time
Deadline
Annual window — 2026 closed Jul 31, 2026
Award type
Cash grant
Focus
Org capacity · Patient & family support
One-time grants to rare disease patient advocacy organizations for programs and disease education, disease-agnostic within rare disease; 75 grants were awarded in 2024. In 2026 the program narrowed to US-based organizations. A companion #RAREis Scholarship gives $5,000 to students living with rare diseases.
Why it's in this index
BSF is eligible as a US-based rare disease advocacy organization.
Who can apply
US-based rare disease advocacy organizations (2026).
How to apply
The annual application window is posted at rareiscommunity.com (the 2026 window closed Jul 31, 2026); contact rareconnect@amgen.com.
Links & downloads
Related programs
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Last updated August 28, 2026 · Suggest an update to this entry